Wock Package 3 aims to develop new bioethical frameworks for interdisciplinary, patient-centred care for individuals with IVSCs and support for their families, including developing principles, protocols and decision-making tools to assist clinicians, multidisciplinary teams, and their institutions to evaluate and deliberate considerations for treatment in individual cases, while attending to systemic concerns regarding existing treatment models.
To achieve this, we will:
- Centre the contributions of psychosocial support and peers in coordinating care.
- Attend to address systemic ethical and justice issues to ensure respect for the human rights of individuals with IVSCs, and address intersectional forms of disadvantage including for Aboriginal and Torres Strait Islander people, and people with disabilities.
- Address healthcare issues across the lifespan.
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