Work Package 2, this stream, aims to gain a comprehensive understanding of the health, wellbeing and health service experiences of adolescents and adults with IVSCs. Research in this stream will seek to understand: their perspectives of their health and wellbeing experiences and needs; what risk and protective factors are associated with their health and wellbeing outcomes; how do health service experiences, preferences and utilisation vary by biographic and psychosocial factors; what are the health and wellbeing needs of family members; and what are the experiences of their family members in accessing health care?
We will do this primarily via the following means:
- Conducting interviews with people with IVSCs and their families to better understand their health and wellbeing needs and experiences.
- Co-designing a new population survey with people with IVSCs to establish a national understanding of the health and wellbeing of people with IVSCs.
- Exploring the acceptability of linking people’s administrative health records to their survey data to examine people’s health service use.
- Developing new methodologies to inform a longitudinal population study
Research team
Natalie Amos
Adam Bourne
Kate Burry
Morgan Carpenter
Bridget Haire
Bonnie Hart
Jordan Hinton
Martin Holt
Ashleigh Lin
Anthony K J Smith
Julie Mooney-Somers
Christy E. Newman
Ingrid Rowlands
Penelope Strauss
Latest health experiences news
Latest health experiences news
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Recording and key takeaways from 5 June 2026 Innate Variations of Sex Characteristics Lecture and Panel

On 5 June, Interconnect Health team members were delighted to participate in a lecture and panel discussion about Innate Variations of Sex Characteristics (IVSCs) at UNSW Sydney, alongside CoPQTI and InterAction for Health and Human Rights. The event featured contributions from Interconnect Health Chief Investigators Morgan Carpenter, Bridget Haire, and Bonnie Hart, with discussions unpacking…

